They boys are officially three weeks old today!
Asher had a REALLY good day and week. His surgery had an immediate improvement on his behavior – he was no longer “twitchy” or noticeably agitated and his heart rate finally dropped back into normal ranges. He currently has a “speed bump” on the top-side of his head where the reservoir is located and the Nero surgeon taps or drains the reservoir. Another improvement after surgery was Asher’s respiratory performance, they put him on the ventilator for surgery but removed him the next day and ever since they have been turning down his settings … and today he is breathing with ZERO assistance, not even an oxygen nasal canula! He has also been steadily gaining weight and has moved to feedings every two hours as they move toward a “normal” feeding schedule. He currently weighs in at 2lbs 15oz!
Aaron continues to grow noticeably every day. He has also moved to “normal” feedings of every three hours and weighs in at 3lbs 6oz. He is getting very active – eyes are open, lifting his head, and moving around in his isolate … yes moving around in his isolate! The other day Dad found him completely sideways with his head pressed against the side between the two port holes with his bum in the air – picture to come – but it was absolutely adorable! Aaron continues to breathe comfortably with very little assistance from an oxygen nasal canula, although it is hardly ever in his actual nose … he doesn’t seem to want to get rid of it just yet.
Anders had a pretty good week, but started to have a little trouble breathing the past couple of days. It seemed like he was working a lot harder to breathe. They did a chest x-ray yesterday and it showed substantial fluid in his lungs, so they moved him to CYPAP which is similar to CPAP which is a respirator that would give him a little assistance while they give him some medication in an attempt to remove some of the fluid. They also gave him a blood transfusion to give him a little boost. Tomorrow they will take another chest x-ray to see if the medication helped and they are probably going to do another echocardiogram to see if his PDA has changed. We are not overly alarmed as it has always been a possibility that his PDA might come back and he is still so small that small fluxes can have a substantial impact on his breathing. However, he continues to do really well with his feedings and is now on fully fortified milk. He slowly gains weight, weighing 1lb 14oz but with the medication to remove extra fluid may cause him to lose a little over the next couple of days.
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